Monday, July 13, 2015

Single Mom Needs Piano to Teach-GoFundMe

Single Mom Needs Piano to Teach

I recently lost a job that provided half my income. I am fortunate that I still have my other part-time jobs, but suddenly losing $15,000 in yearly income ($7500 for the last six months of 2015) is quite a shock, especially as I am the sole wage earner in my family. I also lost the space that I use to teach students.

Part of my plan for income replacement is to do a lot more teaching of music students. I do not have a "real" piano and my Clavinova has about 5 keys that stick on a regular basis, which makes it almost impossible to use. I am doing a GoFundMe to help me get a decent piano. I do not want a fixer-upper, or a free one with problems. Teaching can't really be done well on a piano that has sticking keys or other flaws.

Image is a Yamaha P-22 for sale at a local piano dealer. The cost is $3490, plus tax. I have raised $586 so far (GoFundMe also takes about 8% so I think it's really a bit less. (Now up to $656.)


I am trying to make the best of this situation, and to move as quickly as I can to fill the gaping income hole. Please help donate if you can! I like what one person wrote as a comment on their donation:


I know that I do inspire my music students, which is one reason I am choosing to pursue more teaching at this point. I will also be looking into other options, but teaching is something I enjoy and do not have to make a huge investment in, as I already have skills and experience and a growing clientele.

Single Mom Needs Piano to Teach

A blog post that was written about this! http://auti-stim.tumblr.com/post/124039591668/single-mom-needs-piano-to-teach-by-paula-c  Thank you!!!!
---
In other developing news, I was on the way to look at the piano today when the car broke. Luckily, I was only about 200 yards from my driveway. The van has over 400,000 miles on it. I am NOT doing a fundraiser for that. I am hoping to hear about another inexpensive car by word of mouth- Craigslist being somewhat of a mystery to me. I just HAVE to share this awesome picture of my odometer yesterday (it had 400,060 when the serpentine belt jumped the track today).


Updated images!

Up to $656. Very encouraging at a time like this! Now $776!

Now at $826! Yay!

Amount is now $2040 and I wrote "What a wonderful community!!!!!"

Tuesday, May 26, 2015

Typed Words Loud Voices - Autonomous Press

It's out! Finally, the book we have been waiting for!

Typed Words, Loud Voices, is edited by Amy Sequenzia and Elizabeth J. Grace, and published by Autonomous Press.

At 147 pages, this volume is packed with important information, thoughtfulness, explanations for people who are not familiar with or do not understand nonspeaking or partially-speaking communication. It feels to me like way more than 147 pages-worth of material.

This book is for people who are Autistic, people who do not speak or have irregular access to spoken language (including Autistic people and others), anyone who is interested in autism and Autistics, parents of people who are Autistic, educators, therapists, speech therapists.I really wish educators, therapists, and non-Autistic/speaking people would read this book, especially those who think that because people can't talk, they can't think. PLEASE read this book if you fall into that category.

First, I am posting a link to the video that accompanies my essay. I wanted to put the link in with the writing, which is about the video and why I made it, but the link was inadvertently left out. This is a direct link to the video. If you buy a copy of Typed Words, Loud Voices, you can go to this link to see the video that I made in 2012, which shows me not being able to talk at that time. Nonspeaking (at Times) Autistic Makes Video, Version II Readers of my blog will probably have seen the blog entry and video that are my essay in Typed Words, Loud Hands, but for those who access the blog from reading the book, here it is.

The first day I had the book, I read the front blurbs (four of them) and the foreword by Melanie Yergeau. I read Amy and Ibby's introductory material, and then had to stop because I loved the book so much already that I had to walk around hugging it like it was a favorite stuffed animal or pet. I love this book! It is so important to me because it gives me a lot of insight into other people who type to communicate. some of them are very much like me, some are quite different. All the language in its almost infinite (57 contributors [if I counted correctly] and 68 entries not counting the front and back material, which is just as important as the other essays) variety speaks something to me that I can't get from, well, spoken language, and speaks to a lot of my experience as a partially-speaking communicator.

This amazing book is now available on Amazon here:

Typed Words, Loud Voices- Paperback edition

Typed Words, Loud Voices [Kindle Edition]

"Owned by disabled workers, Autonomous Pressseeks to revolutionize academic access." You can find Autonomous Press at these links:

http://autpress.com/ "Access First. We are Autonomous."

Autonomous Press on Facebook

https://twitter.com/AutPress

Autonomous Press also has two other releases and is seeking submissions for a new anthology.



Cover of Typed Words, Loud Voices, with cover art by Alyssa Hillary -with orangeish-red and greens, purple and very dark gray (I think) on a sort-of periwinkle blue background.  Text says: Typed Words, Loud Voices Edited by Amy Sequenzia and Elizabeth J. Grace.





Wednesday, April 1, 2015

#AutismAcceptanceDay5 - 5th Annual Autism Acceptance Day

#AutismAcceptanceDay5 International Autism Acceptance Decade 2010-2020. Moving Beyond Awareness.Original blue version



#AutismAcceptanceDay5 International Autism Acceptance Decade 2010-2020. Moving Beyond Awareness. Red version
Celebrate Autism Acceptance Day and Month for the fifth year!

2015 also marks the half-way point in International Autism Acceptance Decade, from 2010-2020

The original blog is here. Interviews with Autistic people are still being accepted. We have been doing interviews with Autistics for three years now. The interviews highlight Autistic experience and  acceptance of Autistics. 

http://autismacceptanceday.blogspot.com/

A number of new initiatives this year are:

#WalkInRed at

http://walkinred.weebly.com/

https://www.facebook.com/events/441004906049419/ 



Please do searches on Autism Acceptance, Autism Acceptance Day, Autism Acceptance Month, Walk In Red. I have scheduling conflicts that do not permit me to search and put everything here right now. Please put links to ACCEPTANCE in the comments section and I will post them.

Other important links:

http://www.autismacceptancemonth.com/about/

http://blogs.plos.org/neurotribes/2012/04/02/autism-awareness-is-not-enough-heres-how-to-change-the-world/

Friday, February 13, 2015

Who Killed Alex Spourdalakis?

Movie Review: Who Killed Alex Spourdalakis?

Note: I am too exhausted by this topic to add more text. Please read the links and pass it on. I made the first two images. I will provide a translation for the second one when I can do so. It is another image originally made by the "documentary" makers that I have altered for the sake of correct information- that Alex Spourdalakis was murdered by D. Spourdalakis.

Sensitivity warning for image of murder knife (made by the "documentary folks at Autism Media Channel). Image is of a DVD cover, and is a knife (which points down toward the name of Alex Spourdalakis because these people really are violently inclined). The text above says "Ignorance, Negligence, Indifference: Autism and the US Healthcare System." Below that is the title "Who Killed Alex Spourdalakis" and then "A documentary by the Autism Media Channel." I have altered it a bit. I added text that says "Alex Spourdalakis was murdered by his ex-mother, and by the fanatic conspiracy-mongering anti-vax hype that led her down the slippery slope of disrespect and violence." Down where it used to say "A documentary.." it now says "A conspiracy theory by the Autism Media Channel."










Image of a single candle. Text: "He was 14 years old. His name was Alex Spourdalakis. (larger text): His name was Alex Spourdalakis. (larger text): His name was Alex Spourdalakis. And he deserved to live. Autism is never a reason to murder. By MamaBeGood.blogspot.com



Autistic Community Vigil in Memory of Alex Spourdalakis 

Alex Spourdalakis Murder-ASAN Calls for Federal Hate Crime Prosecution

CBS Provides Glimpse into "Documentary" Defending Autistic Teen Alex Spourdalakis' Killers





Wednesday, November 5, 2014

Murder of London McCabe, Age Six

It is with a heavy heart and much anger that I report yet another murder of one of our people. Six-year old London McCabe was murdered at the hands of a relative. I have stopped calling these murderers by any sort of parental or familial name. When you murder your child or family member, you stop being a family member. When you murder someone under your care who is dependent on you, you don't get to be called "caregiver" any more. One of our people refers to belonging MORE to the Autistic and disabled community than to a murderous family member. This does NOT dismiss those family or community members who would never have wanted the murder and would have done anything in their power to stop it. It does mean that the murdered person ALSO belonged to the community of disabled people, even if that person was not aware of our (non-monolithic, by the way) community.

News media, including NBC, has the usual "both sides" stories. As though there was a legitimate "other side" consisting of people who would murder their children or are planning to, and that "we" should give "equal time" to those people. They certainly should have enough airtime to be exposed as people who need to be monitored closely, but they don't need their views to be "equal." When someone is murdered because of their race, ethnicity, or sexual orientation, do we give "equal time" to racist supremacists, anti-gay fanatics, or other "justifiers?" No, we do not. At least not in supposedly professional "mainstream media." (Bloggers can, of course, write what they want, and those who support and justify murders need to be watched closely for signs that they are about to commit crimes.)

"Expert" Dee Shepherd-Look was dug up from somewhere by NBC and has this nugget of "truth" (because she's an expert....) "These children are really unable to be in a reciprocal relationship and the moms don’t really experience the love that comes back from a child — the bonding is mitigated." Really? Because PARENTING IS NEVER RECIPROCAL. Newborns don't reciprocate. They cry and need their diapers changed and eat every twenty minutes. Not exactly reciprocal love. SIX-YEAR-OLDS, which London was, whine and beg for candy at the store, even when you are exhausted from whatever else has gone on in your day. They might say "I love you" or not. Their needs come first, especially THEIR NEED FOR SAFETY AND PROTECTION AT AGE SIX. Teens- reciprocating? Sure, but not all the time. Sometimes they are TOO clingy, which is NOT reciprocal. Most teens are not all about "Did I reciprocate enough with my parent?" London will never get to BE a teen. People in their twenties and thirties? They are living their own lives. For a parent who has a grip on what raising a child means throughout the lifespan (a lifespan that London McCabe will never get to experience), the GOAL is to have the person NOT reciprocating all the time. Or even any of the time in some cases. PARENTING IS NOT RECIPROCAL AT ANY AGE. This is not earth-shattering news. Sure parents feel hurt, rejected, even despised at times, depending on the age of the child, the situation, the context, the need for distance.

A number of blog posts have been written in the wake of Shepherd-Look's questionable portrayal of Autistics: A Defense Against Libel

I am DONE with excuses for murder, asking me to "walk in the shoes" of some "mom" who has killed her kid. But before I was finally and completely done with thinking about walking in the shoes of a murderer....

I tried imagining the murderer in the case of London McCabe, because I thought "Gosh, I should actually try this instead of always countering it like I did with Alex Spoudalakis (age 14, brutally murdered including almost hacking off his hand) or Issy Stapleton (attempted murder by charcola burner in car, which she survived). So, I imagined being in the room with the person who murdered London McCabe, and..... I am a very visual thinker, so can easily imagine being right there. And.... what I felt most was that I wanted to punch her. I did not feel this about the other murderers, because I did not try. And won't. I don't want to feel that aggressive about anyone. I can't murder anyone, I can't even feel comfortable wanting to punch a murderer. So sorry, people who want me to "walk in their shoes." I then tried imagining being her and holding a child, even MY child, over the edge. I could also NOT DO THIS because EVERY CELL IN MY BODY would be trying to SAVE MY CHILD not KILL him. This made me feel very frightened and disoriented and wanting to cry and scream. I could not because my child is in the other room and he would want to know what is going on. I did not get as far as imagining letting go of the small hand (Or whatever body part) that would allow my child to plummet to an icy death below. Recently I lost health care access and so access to anxiety medications, but I managed to save a few for difficult times. After doing this thought experiment, and having to go out and conduct a rehearsal tonight, it might be one of those times, as I am still shaky.

I COULD, however, imagine dangling from a bridge and how it would feel to hit water 130 feet below (like hitting concrete) and then drowning slowly. What that made me feel was: frightened, sort of like I could not breathe, cold, and shaking. There. Now those who want to suggest walking in someone else's shoes? Be sure you take that walk yourself- imagine yourself hitting water after accelerating at 32 feet per second per second for 130 feet.

So much for asking me to imagine being a murderer. I will NOT ever try this again, but will go back to JUDGING murderers (but not hating them, actually. Hate is another matter altogether, and hate and negative judgment are not always linked) and countering people who make excuses for the murders or people with disabilities.


London McCabe, age 6, murdered by dropping him off a 130-foot bridge into icy water. Yet, "expert" Dee Shepherd-Look whines about "the moms" [sic] and how they don't get "reciprocal" love. Guess what. PARENTING IS NOT ALWAYS RECIPROCAL FOR ANYONE, MS. "EXPERT."

http://autisticadvocacy.org/2014/11/statement-on-the-murder-of-london-mccabe/

http://geekysciencemom.tumblr.com/post/101852838442/i-have-no-words

London McCabe was a wanted child

Comments on the murder of London McCabe by Zoe Gross

http://loveexplosions.net/2014/11/05/ability-to-love-presume-competence/


Have someone you are afraid might be plotting to kill you? Have concerns about yourself maybe hurting or killing someone? Some resources are here. Not an exhaustive list but might help prevent the worst kind of harm. http://tool-kit-autistic-alternative.blogspot.com/

*Included in being "DONE with excuses for murder, asking me to "walk in the shoes" of some "mom" who has killed her kid," as I said above, I will not be posting comments that then ask me to make excuses for murder for one reason or another, including "I don't approve of what she did, but....". I just won't.

Many people notice the stark difference between the media and "comment section" treatment of murdered Autistics and people with disabilities, and murders where the neurology of the child is "typical" (or presumed to be). An excellent post about this topic is here, comparing the murder of London McCabe and that of Scott McMillan, reported two days later. NOTE: The blog post links to some graphic descriptions. A Tale of Two Murders

Image of London McCabe wearing a hat. Text says "Belssed Be, London McCabe. 2008-2014. NO MORE AUTISM FILICDE

Image of London McCabe holding toy helicopter. Text is #JusticeForLondon


Tuesday, September 30, 2014

Copycat Murders a Concern for Autistics, Most Parents



AMC Theatres is now showing "Who Killed Alex Spourdalakis." The date I notice is October 16 in Dallas at AMC NorthPark 8687 Central Expy 300 Dallas Texas 75225. Does anyone want to organize a protest at the showing? I am not in Dallas or I would be out there with some literature to hand out. This showing does no good, except it makes money for AMC and allows people who want to sidestep the fact that a murder was premeditate and committed to have a very public, national venue in which to (even if unintended) put the idea into people's minds that so-called "mercy-killings" and "angel in heaven" stuff is not as bad as heinous. 

Note: The original press release for this "documentary" was September 1, 2913. K. Stapleton attempted to murder Issy Stapleton on September 3, 2013, two days after the press release. 

Sept. 1, 2013 Press Release of "Who Killed Alex Spourdalakis?"

September 3, 2013 news reporting attempted murder of Issy Stapleton

Do you think this is just coincidence? It might be, of course. Then again, it might not. I am very concerned for my people, and all people with disabilities.


Contact AMC here: https://www.amctheatres.com/contact/feedback

I wrote this to AMC THeatres: I am writing to express my concern about the film called "Who Killed Alex Spourdalakis?" to be shown at Dallas AMC NorthPark 15 on October 16. The video is a thinly-disguised attempt to justify the murder of Alex Spourdalakis by his mother, which included multiple stabbings and  almost severing his hand. seem to be trying to influence the outcome of a murder trial. Since there seem to be some copycat murder attempts shortly after murders of a person with a disability get a lot of media attention, showing this film, which blames the disability and focuses away from the premeditated murder, may be dangerous for those of us with disabilities.  Please reconsider showing this ”documentary.”  







The pre-release of the film was posted on numerous websites that announce upcoming films. Two days later, K. Stapleton attempted to murder Issy Stapleton. With each fresh murder or murder attempt, a bevy of what are sometimes called "supporters" join forces to try to make us "understand" and feel "compassion" for the murderer, not the victim. Some of these people are concerned for themselves, about murdering their own children or people under their care. While attention is needed to the very serious issue of murders of people with disabilities, showing a film that derails the conversation by blaming vaccines, autism, "lack of services" and everything other than the murderer is DANGEROUS for people with disabilities. I have not seen one person write in comment sections on various articles or sites* "Wow, after watching this film, I realized that there is no way I would ever kill my child. I was concerned about myself initially, but now I stand with those who condemn murder." That would be something. That is not what is happening, though.


* (including the Dr. Phil show, which had as one of its effects an attempt to suggest that K. Stapleton not serve time for attempted murder) NOT ONE that I notice

The "Who Killed Alex Spourdalakis (Answer: His Mother)" film is not a documentary offering a "glimpse" into autism or into the workings of the mind of murderers. Instead, the film suggests that "lack of services" leads to the murders of people with disabilities. In news reports after the murder, it appears that the murderers actually turned down services that were offered. The article and the forthcoming video (if it is ever completed) attempt to justify the heinous murder of Alex Spourdalakis, which included multiple stabbings and  almost severing his hand. In fact, the filmmakers, perhaps in collaboration with CBS, seem to be trying to influence the outcome of a murder trial. This "excuse" for murder would never be tolerated in any other circumstance, even difficult circumstances such as poverty. It is not tolerated now, by our community, that of Autistic people, our parents, families, friends, and communities. 

From my previous post on this topic: 

Typically, conspiracy theories, including films, appear after a verdict has been given or when some information is missing, or a person is missing. In this case, CBS and the filmmaker engage in conspiracy tactics before the outcome of the case, and with full information about how the murder was done (pills and knife), where, and how long it might have taken for Alex to die after having been repeatedly stabbed and his hand almost hacked off. There is no "whodunnit" here.



Commentary on the "documentary" by Autistic advocates and parents of Autistic children: 

It is Now OK to Kill Your Child

Whitewashing the Brutal Murder of Alex Spourdalakis

CBS Provides Glimpse into "Documentary" Defending Autistic Teen Alex Spourdalakis' Killers 

Sharyl Attkisson and CBS News: Lying by omission about the murder of autistic teen Alex Spourdalakis


Alex Spourdalakis running, when he was alive
Issy Stapleton





Saturday, September 13, 2014

K. Stapleton Murder Update- Justice for Issy

K. Stapleton, who is being held without bail and faces a life sentence for attempting to murder her Autistic daughter, is getting a day of celebrity on the Dr. Phil show on Monday September 15. The following day, September 16, the program will continue.

On Monday and Tuesday, people will use Twitter to let @DrPhil and his audience know that Issy Stapleton is the victim, not the person who tried to murder her. On Facebook the event for this initiative is Tell Doctor Phil and the Media that Issy Stapleton is the VICTIM. The event organizers write:  "When the media reports on cases of violence and abuse against Disabled individuals, we MUST hold them accountable to telling these stories with respect to the actual victims of these crimes. Our lives matter!  When a Disabled person is the victim of a violent crime, we must not allow the media to talk about "lack of services", or the "burden" of what it is like to care for us. This is the rhetoric of fear, of hate, and victim blaming. That is unacceptable." Please use the hashtag #JusticeForIssy in your tweets and posts.

The blurb for Tuesday's Dr. Phil show reads "Dr. Phil continues his exclusive jailhouse interview with Kelli Stapleton, a mother accused of trying to kill herself and her severely autistic 14-year-old daughter, Issy. Kelli recently pleaded guilty to a felony charge of first-degree child abuse. Does she regret her actions that day? And, hear from Kelli’s best friends. Were there any warning signs that Kelli was reaching her breaking point? Then, another mom, Lisa, says she knows Kelli’s pain all too well. She says her autistic son is extremely violent, and she says she contemplated a similar tragic scenario for herself and her son. Plus, find out how you can help Issy secure a healthy and productive future."

I can tell you how to "help secure a healthy and productive future" for Issy and all disabled people who rely on parents or other caregivers, Dr. Phil:

Don't give any positive attention to would-be murderers. Don't call autism a "jail" just because K. Stapleton does. Be respectful in your descriptions of autism and other disabilities. We Autistics are watching. Don't hurt us with your comments. We won't be safe if we are talked about in a way that makes people think we are barely worthy of life. There's NO "future" for some of us if parents and other caregivers get the idea that we really don't deserve to exist. Interview people other than the attacker's friends. Interview Autistic people. Confront/question members of the audience attending the show who might "take the side" of K. Stapleton. Make sure to condemn murder and call for the maximum penalty so that copycat murders do not occur in the wake of your show. Direct your audience to the Tool Kit of Resources from the Autistic Community or similar resources.

I can only hope that Dr. Phil or some of those who are interviewed will come out strongly against K. Stapleton and in defense of Issy and all disabled people's right to our own lives. 

Note: I only used Stapleton's first name in order to make this post accessible in search engines. I would prefer to not use her first name: many people have pointed out that she gets called by her first name, almost as if everyone is on an intimate basis with her (especially people who pressure those of us who condemn the murder attempt to walk in her shoes) while Issy's name is often not even used. Let us remember who the real victim is here: Issy Stapleton. I am sorry that this mother made this choice, but no excuses for murder/attempted murder of another human being are acceptable. (Shortended link for the post is http://bit.ly/1quEJxI).

The "understanding" that is being called for is often a thinly disguised plea to "go easy on her." The disabled community cannot afford to do that, when one compares the dialogue around the murders of people with disabilities to other murders. Calls for understanding the murderer are part and parcel of any discussion about the murder of a disabled person. This focus on the "humanity of the murderer" rarely happens in other murder settings. Because of this pervasive societal attitude, tipped toward dismissing our lives in a very concrete way, disabled people are in harm's way, all of the time. Many of us are at the mercy of family or other caregivers. A strong stance against violence against us must be maintained in order to counter the tendency to see our lives as not worth living.

For anyone who is concerned that they or someone they know might murder a disabled family member, please look at the Tool Kit of Resources from the Autistic Community which has information and links that can be helpful. Remember, murder is NOT really your "only option."

Short link for this post is http://bit.ly/1q13Gut

Issy Stapleton

Image says #disabilityisnotacrime #JusticeForIssy #OurLivesMatter This image is from the Facebook event linked above.


Related posts:

Petition for maximum sentence:
https://www.change.org/p/the-hon-james-m-batzer-sentence-kelli-stapleton-to-the-maximum-sentence

Changing Conversations: When Parents Murder Disabled Children

https://www.youtube.com/watch?v=_meEG2_JQlQ&feature=youtu.be&list=UUPdav0-DEzYJc4t4IYn_3ug 

http://www.autistichoya.com/2013/09/people-issi-stapleton.html

I will come back and do more links later. Very tired with reading and writing about this. Please post your appropriate, non-supportive of murder links in the comments section.